Cystic Fibrosis Really Sucks

11:00 AM Katy 15 Comments

My niece just had a broviac catheter placed for the first time, trying to kill off stubborn lung infections. I was so hoping that Ally would not have these difficulties so soon. Any prayers would be appreciated for Ally and my brother's family. My sister-in-law Emily will be giving her the meds at home over the next few weeks.

If you have any inclination to donate to finding a cure, please do.

I am squeezing Santa's loot into my trunk this week and trying to keep it from the kids, but my heart's not really in it this year. Me and my kids have been going through a rough time lately, and I'm just trying to keep it together. One day at a time. If only the homeroom moms at school would stop sending me a billion requests for money for various parties and snacks and teacher gifts and fundraisers-- I think I'm about to snap. Don't they know that there are far more important things going on right now that demand my attention?! But of course that isn't fair, I suppose.

For some reason forgetting to send in another damn check to the school makes me feel like a bad mom, like dragging my crying 6 year old out from under his bed and explaining for the 10th time that I don't know why God let this happen to us. I just don't know. And I can't make it better. But I love him so much.

I wish the sun would come out for a while.

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  1. I will say a prayer for you and your kids.

  2. Keep on keepin' on...sometimes that's all we can do...our family is just now coming out of a very dark period...and I keep thinking and waiting for the ceiling to fall again...that is such a horrible way to live, isn't it? PTSD, I guess...

  3. Aw, Katy. Hugs for you; hugs for your sweet little boy. And prayers all around.

  4. ...and the stuff that sucks jumps to a super-sucky level around the holidays when everyone is so merry and happy.

    i say no to school and my kids' wide eager eyes more than i care to remember but that's where we are right now.... and may be for a while....though i've learned to not to look to far ahead.

    prayers upon prayers for your beautiful niece. i recently listened to a wonderful news story about success with a new cf drug. fingers and toes crossed.

  5. Katy,
    I'm praying for good things to come to you and yours in the year a head.
    Merry Christmas

  6. I just said a prayer for you and your family. Life can be so hard sometimes and I hope you know you're not alone, even if you feel that way. We all have those moments where we feel like a bad mom, but your kids know that you love them, they have a home, a bed to sleep in and food to eat, so they have what is most important. God bless!


  7. There is no God. God does not exist. Stop voting Republican, too. You can blame them for why things have become so difficult.

    History has proven over the last 100 years that when Democrats control the government, the economy does significantly better and the standard of living rises for the middle class. Also, stop support wars that drain the Treasury.

  8. you can have the politicians - I'll stick with God.

  9. Katy, praying for you and your dear ones.

    "For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future."

    Hang in there :)

  10. From one Katy to another...I am sending positive thoughts and prayers for you.

  11. Praying for you and your family. The Lord has a plan, even when it gets so hard! You are an amazing mom- don't you EVER feel like you aren't. Your kids are so blessed to have as a mom, you LOVE them so much!

    Praying for sun.


  12. Katy, I don't know you except through your blog.... As a Mom who has been down the "survivng after" path, I want to applaud you for not always trying to put a happy face on. Divorce and the things that make it necessary suck in a huge way. It will get better. It really will. The holidays can be so hard. And each time my kids reached a new developmental phase we had to process the divorce crap all over again. You're right... Stick with God and let others have the politicians. You have more important things to deal with. When you don't have hope remember that there are those of us "out here" who are holding onto hope for you. We'll give it back whenever you are ready. Prayers. LynnR

  13. I just found you today...funny thing last night we had a surprise birthday party for my daughter Mika ..she is 30.. a mother to 6 yr old twin boys...and ...she too has does suck....but she is kicking it butt..hang in there...God has a plan...Miracles do happen......

  14. Hang in there Katy...dark times suck especially around the holidays. The sun will come out again as my mom told me a long time ago when I was going through a chitty time. BTW, loved your comment to the anonymous commenter. Gotta love the anonymous ones...their balls must have been cut off somewhere down the road :)


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